Shelter From The Storm

Caring For A Child With A Life-threatening Condition

Karen Lindsey author Daniel Tobin author Joanne Hilden author

Format:Paperback

Publisher:Hachette Books

Published:18th Dec '02

Currently unavailable, and unfortunately no date known when it will be back

Shelter From The Storm cover

critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.

ISBN: 9780738205342

Dimensions: 215mm x 139mm x 15mm

Weight: 294g

240 pages