Family and Disability Activism
Beyond Allies and Obstacles
Allison C Carey editor Pamela Block editor Richard K Scotch editor
Format:Paperback
Publisher:Temple University Press,U.S.
Published:6th Jun '25
Should be back in stock very soon

In 2020, Pamela Block, Allison C. Carey, and Richard K. Scotch published Allies and Obstacles, which examined the tensions and connections between disability activism and parents of children with disabilities. In Family and Disability Activism, they continue to examine these issues with a focus on the path-breaking advocacy by marginalized activists with intersectional lived experiences.
Family and Disability Activism reveals how families and disabled people who identify as BIPOC and/or LGBTQIA2S understand issues of rights versus justice. Contributions by Deaf and disabled activists emphasize the frequent need for either care or independence. Other chapters show how members of the disabled community and their families must navigate systemic issues of segregation, institutionalization, and access to special education services differently depending on their ethnic and racial identities.
Expanding the conversation about disability, kinship, biological and chosen families, and activism, this volume amplifies important voices in the fight for disability rights.
Contributors: Erin Compton, Diane Compton, Jaclyn Ellis, Laura LeBrun Hatcher, Elena Hung, Bridget Liang, Jenelle Rouse, Cheryl Najarian Souza, Jeneva Stone, Roger A. Stone, Lisette E. Torres, Grace Tsao, and the editors
“In an introduction and nine chapters, diverse disabled activists, sometimes in conversation with family members, analyze the complexities of intersectionality. The editors and contributors write about hidden histories of racial-ethnic disability activism; the benefits and limits of cross-ethnic and cross-disability alliances; and the pressures that parents and siblings of disabled people face as they both support their loved ones and strive to normalize or resist the discrimination of medicolegal, educational, and service institutions. Authors, families, and strategies are as diverse as disability itself; Family and Disability Activism is an exciting foray into disability activism’s history, present, and future.” - Faye Ginsburg and Rayna Rapp, authors of Disability Worlds
“Family and Disability Activism is a book that proposes dialogue in this moment of division. An excellent expansion of Allies and Obstacles, it is the best short anthology I’ve read on disability justice activism in years. The cross-disability inclusion is on point and needed. As an Afro-Latine Indigenous disabled parent, I appreciate seeing every perspective on what defines family and how disabled activists and parents approach advocating for disabled lives. This book provides hope in a moment of global unrest.” - Kerima Çevik, Disabled Parent Activist, Creator of #AutisticWhileBlack, and Certified Disability Support Broker
"Themes of parent-activism and amplifying children’s voices play out in every chapter. The stories bring intersectionality to life as living, breathing, and informing Equity, Diversity and Inclusion, Disability Studies and other fields of research. The book deserves to reach far beyond the disability community.... The book’s poignant final stanza is a rallying call made by disabled young person Erin Compton: ‘In a limitless world, we cannot limit ourselves to one way to speak, read or lead. We just can’t.’ This argues that action can take many forms, and needs to take different forms if it is going to be culturally ‘fitting’ to all communities.... The book hints at a future where future assistance and allyships, as well as obstacles in the path ahead, are unknown. With the various recommended solutions to demolish barriers, there is hope for a future truly beyond obstacles." - Disability & Society
ISBN: 9781439923894
Dimensions: 229mm x 152mm x 18mm
Weight: 286g
212 pages