A Parents' Guide to PANDAS, PANS, and Related Neuroimmune Disorders

Clear information and advice for families on what to do if your child has PANDAS, PANS or encephalitis

Encephalitic autoimmune disorders, including PANDAS and PANS, cause children to display a wide range of symptoms including OCD, anxiety and tics. This helpful guide provides information for families on diagnosis and medical interventions, alongside practical strategies for support that families can carry out at home.

Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.

The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.